Backstory
My fiancée suffered a traumatic brain injury and multiple strokes.
She was emerging from a coma in a skilled nursing facility that was unfamiliar to her. Because of her strokes, her head was turned so that she could only see the exterior wall. I was scrambling to do whatever I could to improve her quality of life there while managing her care and trying to navigate all of the unfamiliar medical and legal territory that came with it.
It started with a digital picture frame to give her something to look at, and her old phone and a Bluetooth speaker for music. I then added a smart display — a camera and screen I could video-call — so I could actually see her and check in when I wasn't there. It helped, but it was far from private. I knew she'd never wanted a device like that in our room, but she was defenseless and unable to communicate in a place that was unfamiliar to me as well. I hated leaving her there — but unfortunately, you can't be there with them all the time. In the short run, being able to see her and know she was okay outweighed the privacy concerns — but it's a big part of why everything I built afterward is private by design.
I quickly realized how scary and disorienting the whole thing must be for her — not being able to see who was coming or going, or what was being done to her. I already had a Raspberry Pi and a webcam. I got an inexpensive monitor and set everything up in her room so the webcam could act as a rearview mirror, showing her what was behind her. That was the beginning of the computer system I started building to help us through her recovery.
As I developed it, it became clear that it could help other people too — and I'm now working to make that happen. I want to build something that is free for everyone and can run on whatever electronics they already have: simple enough for patients with severe cognitive deficits, and deep enough to offer them and their loved ones everything I possibly could to help.
I want to be straightforward about one thing: my primary goal will always be helping Christine. Whatever her current needs and abilities are will dictate my focus.
A note on how this was made: I don't have an extensive programming background. I built it with AI tools and existing open-source work, paying close attention to detail and testing everything thoroughly — first at home, then with Christine. Help from experienced developers would be more than welcome.